Louve RSD Awareness Page
Return to 599 Howling Wolf Lane-The Den of Louve
This page is here to raise awareness about RSD and to honor Louve, a dearly loved sister of mine who has Dysautonomia, a severe form of RSD, a nervous system disorder. RSD causes swelling, severe pain and discoloration. Dysautonomia a.k.a. full body RSD can also cause immune system repression and a rapid heart rate. There is no known cure for RSD. Some people who have RSD eventually heal, but that often takes years and many never heal, having to live with the pain for the rest of their lives. Those with Dysautonomia die after what can be years of suffering, usually from pneumonia or from sudden cardiac arrest. for more info on RSD, please see the section of RSD links at the end of this page. If you want to link to this page, you may use this button.
It will be a sad day when I'll have to add "memorial to the title of this page and change "Honor" to "Honor and Memory".
599 Howling Wolf Lane-The Den of Louve Contains poetry written by Louve about what it's like to have RSD among other RSD related things
ARTWORK
Lttle Fighter. Gone Away (seen below)
modified into a CD cover for
Wild
Animals, a fictional rock band.
Christmas 2001. Louve's favorite musical
is Phantom of the Opera. For Christmas 2001, her husband, Chik'ki,
gave her tickets to see a touring cast, later saying that she was "thrilled
and over the hill to get them." This pic recreates that scene. By
Jennifer Oseicki e-mail and website not available)
A Friend In Need , a story written by Earl Bacon (e-mail) (website not available)
Gone Away. A pencil comission drawn
by Carla Speed McNeil
(e-mail)
(website).
I had this drawn to show Louve that I will miss her when she's gone.
I had it done in pencil because I felt that it being done in pencil
better potrays the emotion in this pic. I had it done to show Louve
that I'll miss her when she's gone. If I had even
the slightest thought that it would upset Louve, I wouldn't be showing it
to anyone.
Origional background The origional background to this page. Changed because it made this page too hard to read. pieced together from drawings of Louve done by UL-Kichebo e-mail website, UR and BL-Bucky Boy e-mail and BR-Stormshade e-mail
Twilight
In Paris Featuring Louve. The first furry pic done of Louve. Other
artwork picturing Louve and a desktop theme
available.
Louve, Chik'ki and I. Drawn from this
photo taken at
Anthrocon
2000 
Some pages linked to here, RSD Hope for example, have RSD awareness products available (pins, stickers, etc.) the profits from selling which go to help those who have RSD.
MUSIC
"A Pain-ful Lesson" by Wild Animals (midi needed lyrics). Written by Louve herself. About the pain of living with R.S.D.
"Best I Can" by Queensryche (midi lyrics). A favorite song of Louve's. About determination and never giving up.
"Little Fighter" by White Lion (midi needed lyrics). A favorite song of Louve's. About someone who never gives up even in the hardest of times.
"If Tomorrow Starts Without Me" by Wild Animals (midi needed lyrics). Meant as a message from Louve to those special to her.
"Let Your Soul Be Your Pilot" by Sting (midi lyrics). A song that means a lot to Louve.
"Music of the Night" from Phantom of the Opera (midi lyrics). Louve's most favorite song.
"Never Forget" by Wild Animals (midi needed lyrics). Meant as a message from Louve to those special to her.
"Only Time" by Enya (midi lyrics). Very beautiful song. It just seemed like it should go here.
"See You on the Other Side" by Ozzy Osbourne (midi needed lyrics). Goes along with how I feel about the thought of Louve's impending death.
"Tears In Heaven" by Eric Clapton (midi lyrics). Another favorite song of Louve's. Mr. Clapton wrote this song after his 4 year old son was killed in an accident.
"The Cup of Life" by Ricky Martin (midi lyrics). A song about celebrating life. Louve has always been the kind of person who always tries to be happy and full of life.
RSD LINKS
Arthritis Center of Connecticut - Medical, legal and clinical services for RSD, pain management, osteoporosis and expert witnessing. Brian Peck, M.D.
Canadian RSD Network - We provide information about CRPS and offer support to individuals and famlies living with CRPS, including pain and stress management
International Reflex Sympathetic Dystrophy Foundation - Dedicated To Helping RSD Patients Worldwide
Jim O'Donnel's RSD/CRPS Site - Site dedicated to comfort and familiarize others of the disease RSD or CRPS
Reflex Sympathetic Dystrophy (RSD) - Reflex Sympathetic Dystrophy is a very debilitating disorder a.k.a. Complex Regional Pain Syndrome (CRPS)
RSD Alert - Includes information, personal stories and links to support groups
RSD-Fighting back - An RSD group for patients in Chronic Pain Reflex Sympathetic Dystrophy Syndrome. Complex Regional Pain Syndrome Reflex Sympathetic Dystrophy is an under diagnosed and an often untreated condition.
RSD Hope-Main Page - The RSD Hope Group, Also known as the Maine RSDS Patient Advocacy Group, is based in Maine and reaches out across the US and beyond.
RSD Online! - Welcome to RSD Online! I hope you find your visit to my site both informative and fun! As you browse through, you will find links to other sites with information about Reflex Sympathetic Dystrophy (RSD)
RSDSA - Reflex Sympathetic Dystrophy Syndrome Association of America Homepage - The Reflex Sympathetic Dystrophy Syndrome Association of America
RSD Mailing lists - The yahoogroups.com e-mailing lists homepage. Enter "RSD", "CRPS", "Reflex Sympathetic Dystrophy", "Complex Regional Pain Syndrome" or any other name that RSD is known by in the search field to quickly find dozens of e-mail groups that center on RSD.
Number of visitors to this page since 8 AUG 2001